Thank you one and all for the thoughts and prayers. While one door closed others are opening for her. Now that she has a diagnosis there are therapies that are recommended for kids with this syndrome. Water therapy, music therapy and therapy involving horses. All three of these are things that have always made her laugh and smile.
Sorry for the delayed response, my wife and I have been busy researching and reading as much as we can about Pitt Hopkins Syndrome. We found a family support group and a forum that we joined for parents with children who have these types of rare afflictions.
Once again thank you all for the support, well wishes and prayers. I cant recall ever being so proud of being a part of something as i am of being a member here.
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